Sunday, July 18, 2010

Abby

AP attended Summer Quest day camp last week at EHE. Margaret spent the week at Bubby and Grandfathers, so Abby and I had the mornings to ourselves. On Monday, she had an MRI. The procedure went well... since she has Central Sleep Apnea, they had the pediatric anesthesia team do her IV and they put it in after she was asleep (they used a gas mask). She wasn't even aware that she had "an owwy shot." After the procedure she was boneless for a couple of hours... I was by myself and it was REALLY difficult carrying all of our stuff, and her, and getting the food in the cafeteria, etc. Next time, I'll definitely need help...
Unfortunately the MRI came back showing that the decompression surgery did not make enough space for her brain. She is still having some pre-surgery symptoms, so we are disappointed that we have not put this chapter behind us... please continue to pray... specifically, we need her spinal fluid to have enough room to flow around her brain... if that doesn't happen, she could need further surgery (more risky than the first)... She is going to have more tests done over the next six months to see if there are any improvements...
A princess party with Princess Genevieve at the Fauquier Library... Abby "just LOVED" Princess Genevieve. She was a bit shy, but very willing to pose for a picture and even showed the princess how to curtsy.
Playing soccer with her big brother. She takes it VERY seriously! She was goofing off and Coach Patrick made her run around the house twice! She carries a water bottle and everything!
The latest thing is to get mad whenever a stranger talks to her... if she thinks she's in trouble, she will hide under something... and if she is really nervous, she pretends she is a cat and licks me- great. These pics are from before her MRI and she was getting frustrated by all the people talking to her...
She's been attending "Making Marks," an art class for toddlers.
We also took the kids to a signing program at the library in Bealeton and a luau story time at the Culpeper Library. And, we've been hitting the pool at least once a week. Fun stuff. Wish summer would never end.