We received Abby's sleep study results a few days before her 3rd b-day and it confirmed our fears. Abby has Central Sleep Apnea. Her brain stem is being compressed to the extent that it is not able to send messages to the respiratory system to breathe. The only solution is to do the decompression surgery. We met April 6 w/ her neurosurgeon at UVA (got a second opinion from a neurosurgeon at Children's) and have scheduled her surgery for April 12. Please pray that the surgery will go well, recovery will be free from complications and that she will not suffer from any more Chiari related issues for the rest of her days...
